The truth about dialysis
The truth is dialysis is not a death sentence.
The truth is dialysis is not a stopgap temporary treatment until one gets a kidney. Even people who get a kidney can end back up on dialysis,so think of transplants as a stopgap temporary treatment between dialysis
The truth is no one modality is better than the others. Sometimes one modality suits a patient better than another…and some modalities are unsuitable for others. Some times people need to switch modalities. That doesn’t mean any one is better or not,just that everybody is different and so are their treatments… the modality a person is on is the modality of dialysis that saves that person’s life,regardless of anybody’s opinion of the modality.
The truth about dialysis is there is no one foolproof access point and not everybody qualifies for every type. Every type of access can get clogged up or infected.No type of access is clot-proof or 100% infection-proof.Just because you can’t have one or another type doesn’t mean you’re any worse off. The access you have is the one that provides your life-saving treatment. Lesson: no matter what type of access,keep it as safe as you can, as long as you can.
The truth is dialysis is a life-saving treatment. More correctly,it is a life-saving ,CHRONIC, treatment. This,coupled with the fact that it requires machines to deliver it, makes it unique even among other chronic treatments. Dialysis is for your life.
The truth about dialysis is what you make it. Dialysis is about your responsibility to yourself. You owe it to yourself to make the best out of dialysis,to recognise it as the treatment that keeps you alive, to make sure you get the best care and that you give yourself the best care. If youy choose to look at your dialysis as a curse and a misery to be endured until you get that magical transplant (as we all hope we will),then dialysis will be just that,misery. If you look at dialysis as the treatment that keeps you alive but choose to be ignorant about the why’s and the how’s,chances are nobody else cares,either. Dialysis is not a plug-‘er-in,let-‘er-go treatment. You are the one who knows your body and mind best,YOU are the one who needs to be proactive about your treatment and make sure you receive the right care.
The truth is dialysis is not supposed to make you feel sick. It is not normal to feel ill,to hurt or otherwise feel unwell and it’s certainly not normal if it is all the time. It is sometimes unavoidable but almost always means there is something wrong with your treatment. There are always reasons for feeling unwell on dialysis and you must make sure that the reason is found so it can be prevented. “It’s just dialysis” is the wrong answer.
The truth about dialysis is that it’s not a treatment unto itself. It is part of a set of treatments just as your nephrologist is a part of your team of healthcare providers. Every treatment is affected by the other treatments. Every specialist on your team needs to work together. The reason for needing dialysis can stem from a complex set of issues just as the side-effects of dialysis span another range of issues. It is important to know and understand your underlying issues & your side-effect issues and it is very important to see the right specialist for every issue. That’s why we have specialists,so utilize them.
The truth is dialysis IS stressful. It is a chronic life-long treatment and such comes with its own special stress. This is normal. However,if at any point the stress becomes too much or you start to have other symptoms of chronic stress,such as anxiety or depression,while it’s still normal (remember side-effects of dialysis?),it’s time to seek advice or help from another member of your team of healthcare professionals. This is nothing to be ashamed of,stress gets to the best of us,chronic stress even more so and treating the symptoms of it so we can feel better is truly in our best interest. Not dealing with it can actually make your physical health worse. The care of a good psychiatrist or therapist can be a great asset in keeping your health.
The truth about dialysis is that you can look at it any way you want,you can feel about it any way you want,but guess what: without it you die so you might as well make the best out of it because the alternative is no life at all.
The ultimate truth about dialysis: it’s about you.